Mallory Jane

Children are loving reminders of what we are really here for.

Friday, May 11, 2007

The Good News Continues

When it rains it pours. This time in a good way. Mallory continues to amaze everyone each day. Occupational Therapy was in to evaluate Mallory and said her muscle tone is good and she does not feel Mallory would need to do OT. The issues we are addressing in physical therapy are endurance, using left arm, holding her head steady and walking again. Anything OT would want to address would also be addressed in PT.

Dr. Canter was very pleased with Mallorys ECHO. In fact he said it looked "fantastic", which is hig praise from him. Mallory has not had as much of a hard time with the withdrawl so they are decreasing her amount of Methadone(sp?). Yeah! They have also decided to only do continuous feeds through the NG tube from 6pm to 6am. She is doing a great job of eating so far. She is her mother's daughter when it comes to food! :)

Mallory went to PT today down in the gym. She had a great time and did well, but tired very easily. Rebecca, her physical therapist is very pleased and amazed in the amount of strength Mallory gains each day. She looks forward to working with Mallory on Monday to see how much stronger she has gotten over the weekend. Mallory will do PT on Saturday and Sunday with a different physical therapist. She is no longer on any IV medications, everything is finally oral. So far she will have only 9 medications when we go home, but that could change, we could go home with more or with less. Lucky for us she has never had a problem taking her medications.

Grandma Marilyn finally got to hold Mallory. I haven't seen my Mom smiling like that in a long time. There were also a few happy tears to go along with it. Mallory's voice and vocabulary are slowly coming back. Her little voice is still very horse but at least she can tell us what she wants. She still uses her sign language as well.

A quick update on our heart friends: Avery brought his parents in to see us when he had a clinic appointment the other day and is doing GREAT! We even got a little smile out of him. Jaden was released from the hospital and is at the RMH for a couple of weeks before they can go home to Oklahoma. Baby Tessa is a fighter too! I think it has something to do with the blue eyes and reddish hair. Hopefully she will be able to join us on the floor in a few days.

Mallory and I are very excited. Scott is bringing Logan and Madison down to see us this weekend. I am sad that my mom is going home, but Dad ran out of pancakes this morning so she has to get back to take care of him. Hee hee:). It was great having Mom here. It doesn't matter how old you are, sometimes you just need your Mommy.

Our prayers for today not only include our heart friends, families, and loved ones, but include all those graduating this weekend. We also pray for all the mothers this Mother's Day weekend. I am saying extra prayers for those Mommies who gave the most selfless gift of all. That is the gift of life to kids like Mallory. Thank You Mothers of Organ Donors!

15 Comments:

Anonymous Anonymous said...

Sounds like you have had wonderful news over the past couple of days! You have quite a fighter there in that precious little girl. I can't help but get the goose bumps (or tears) every time I read your updates. It reminds me to be grateful for all our friends and family. Thank you to all of you for being an inspiration to us all! Good luck and hope to see you at home very soon!

Lori Berner and family

2:43 PM  
Anonymous Anonymous said...

Wendy,
All I can say today is I am so honored to know you. You continue to be AMAZING. I'm so happy for your family. HAPPY Mother's Day to you!

Love,
Robyn

2:49 PM  
Anonymous Anonymous said...

Wendy,

I watched Martina McBride sing "In my daughters eyes" this morning on the Today show. It gave my goosebumps and brought tears to my eyes just thinking of everything you've been through with Mal even before she was born. You are both angels sent from GOD. Have a very Happy Mother's Day with Scott and the "little ones". Hope to see you all home soon.

M&M Pork

5:31 PM  
Anonymous Anonymous said...

Wendy and Mallory,

We have all thought of you often and I look forward to reading your accounts of how Mallory is doing. I just can't wait to see her when she gets back!!! Give her a big hug from all of us.

Ameeta

7:27 PM  
Anonymous Anonymous said...

What great news from St. Louis!
Mallory, you are such a strong little girl and Mommy you are amazing. Thank you for keeping us all updated with your daily blogs.
Stay strong,Wendy, and keep the faith. Our prayers will continue for a quick recovery and a safe journey home. So glad your mom could be with you. (HI Marilyn!)
Enjoy the week-end with your family and Happy Mother's Day!!

Bill & Mary Blacker

7:57 PM  
Anonymous Anonymous said...

Keep the good news coming! Way to go Mallory!

I wish you the very happiest of Mother's Days. You are a "Queen" in all of our books! Enjoy being together as a family this weekned! Hugs to all!

John, Cheryl and Aaron

8:04 PM  
Anonymous Anonymous said...

Oh Happy Day!

9:15 PM  
Anonymous Anonymous said...

I think of Mallory often when I am at work. It still amazes me how strong a little girl can be. I pray each day gets easier and goes faster for both of you. Tell Mallory I still want to take her to her first Rosebud Sioux Tribe fair in August, so keep getting stronger everyday. The Mueller family has been a great inspiration to me and my family. We can't wait to see you all.
Deon

10:14 PM  
Anonymous Anonymous said...

This is so awesome! HAPPY MOTHER'S DAY! Wendy, I hope you have a great weekend together as a family! Enjoy!

Jan Moore

4:17 AM  
Anonymous Anonymous said...

Wendy,
Happy Mother's Day! You are truly an "INSPIRATION".

Mali,
Way to Go! Have a great wknd with Bobo, Sissy and Dad!

Prayers and Hugs to all of you and your extended families in St. Louis!

Shelly N

5:56 AM  
Anonymous Anonymous said...

What a tremendous Mother's Day gift!! Mallory is an amazing, strong little fighter! Enjoy the weekend with your family!

Patty & Ray Janssen

5:57 AM  
Blogger jcvictory said...

We love to hear the good news and are praying for Mallory each night before bed. We'll pray again at church on Sunday and ask that her recovery continues to go well.

Blessings,

James, Lori and Noah

9:15 AM  
Anonymous Anonymous said...

Let the Good News keep on coming! Brynn had a great time last night. She was wiped out! I had a hard time getting her to leave and she was one of the last ones out of the pool. When it comes to swimming there is never enough!! Madison looked like she had a wonderful time - your party crew did a great job. To my knowledge no one was lost!

Hope to see you both at YOUR HOME soon!

Happy Mother's Day :-)
Heather

9:49 AM  
Anonymous Anonymous said...

We have been reading your blog for sometime now and felt like maybe we should let you know how very heart wrenching it is to read about everything you are going through. Everyday we go to our computer to read the updates. We have got to stop reading it at work though, because the customers are starting to wonder why we are crying, (guess the only crying that should be going on in a Bridal Shop is from a happy bride. :)
May Mothers Day hold every blessing you wish for and please know that we have you in our thoughts and prayers.
Jenny Hurt and Linda Schutz

11:10 AM  
Anonymous Anonymous said...

Hey Wendy. Keep the great news coming. Glad your Mom got to hold Mal. I can just see her. Your Dad told me he had the buttermilk pancakes every morning. I ask if he just had to put them in the toaster. He said oh no they are from scratch. Poor guy. I know he can't wait to hold her too. Mal must really be a strong little girl. Has to be coming from you. You are all in my prayers. The Good Lord will get a big thanks tonight at church. Love and hugs to all. Your old neighbor.
Al

12:09 PM  

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