Finding A Balance/The House That Mallory Built/Continued Baby Steps
(Post for Tuesday May 1st since Wendy went home and fell asleep on the couch!)
Happy May Day and Happy Anniversary Papa Kenny and Grandma Jan!
I love the night nurses- day shift too, but the night nurses must buy their shoes at a different store than day nurses. I swear there is a Stelth shoe store that only night nurses know about and are allowed to purchase shoes at. When they even enter the store they must be a card carrying member. :) Jen has purchased those shoes. While I was snoozing in the chair Jen was providing "excellent nursing care" to Mallory. I use quotes because Tara, her day nurse, told Dr. Huddleston when he asked what contributed to Mallory's turn around the day we thought we were going to put her on the EHMO Machine, she replied "excellent nursing care". :)
Anyway.... While I was snoozing, Jen was turning down medications, turning Miss Mallory so drainage in her chest wouldn't pool in one spot, talking softly to Mallory, making sure she wasn't in any pain and cleaning up vomit. Mallory's drugs reallly got out of her system and she was fighting the vent tube because it's a bit irritating, and she threw up so old blood and junk. She didn't throw up any of the feeds that are going directly into her stomach through the NG tube, so that was a good sign. They started giving her Pepcid to help with irritation and a bit of Versed to calm her down. It is such a frustrating balancing act. You want Mallory to be awake and starting to move around, yet you don't want her so awake that she is fighting the tube.
Mallory did receive some blood this morning and her numbers look great. Dr. Canter came in this morning and messed with her pacemaker. She was still junctional, which means her heart is not initating it's own heart beatyet. She is still depending on the pacer to do it for her. It's an electrical problem with the heart and nothing to do with the mechanics of her heart. Her mechanics are getting better. That lazy right side is starting to pick up some of the workload like it should and is pumping better.
At 12:30 You started working around the pacer so they turned it off. I came back from showering at the apartment and you wern't being paced. Talk about a shock. I know Mallory heard Dr. Canter talk about her being junctional and she said "I'm going to show him!" In Dr. Canter's words, "it's like building a house, the electricity is working, the plumbing is getting better and the mechanics will be her soon." Amy, You can tell Molly the switch is on! :)
Plumbing. Yes, right now after any care giver looks at her monitor to see what her heart rate, etc. are running, they ask "Is she peeing? Did she have a BM yet?" So today our goal is to work on the plumbing. She needs to continue to pee, not tot much but not to little and she needs to poop. They are going to help her along with that one. Thats why they wear goloves. Ha Ha :)
5pm Rounds: Things are looking better in some spots than others. It's finding that balance again. The Docs have taken her compleatly off another med, and lowered her ven and nitrate rat. They did need to turn her pacer back on because she hasn't peed enough today and she is retaining the fluid so her heart is working harder and it's harder to breathe. They gave her an extra diuretic and turned her vent up just a tad until she starts peeing again. I told you its a game of balance. Scott was afraid Mallory was taking a backwards step. I told him as I was told, it's not a backwards step because not all the lights on the christmas tree are blinking. The pole next to Mallory's bed holds all the medication pumps, 12 pumbs in all. At one point all those pumps were running some form of medication through them and their lights were blinking. Not all of those lights are blinking right now, so that is a big step for Mallory. She is in a good place and well into recovery. Now lets get her off the vent!
Some of you might or might not know this. Mallory not only shares a birthday with her cousin Trey, but with her Great-grandmother Hilda Steinhoff. I love my Grandma Steinhoff so much! I have so many wonderful memories of her and have always told Mallory that Grandma Steinhoff is her Guardian Angel. My cousin Billie Jo wrote to me and said that Mallory's baby steps remind her of the game of "Mother May I" we always played in Grandma and Grandpa's front yard. Grandma would sit on the front porch snipping green beans she had just picked out of her garden and say, "Wendy, take 3 baby steps forward" . I feel Grandma is playing that game with Mallory right now. She's up there saying "Mallory, take baby steps forward today little one, I'll be watching out for you".
21 Comments:
Glad to hear things are improving for Mallory. With that "stubborn" Steinhoff blood in her, she's bound to bounce back. The memories are flooding in right now thinking of your grandma and mine!
Even though Brandon doesn't know who Mallory is, he continues to pray for her every night (as we all do). Hang in there! You're strength is bound to pull her through!
Robin (Blacker) Martin
Every moment of everyday her body is healing itself. Every moment of everyday she is getting stronger. Every moment of everyday miracles happen - I have seen many in the past 10 years and Mallory is one of them.
Thoughts and prayers, on this Wednesday morning, coming from the Kriegers!
So wonderful to hear...your strength is encouragement for all of us! Thanks again for the updates, appreciate them SO much!! Take good care -- The Shipps
So VERY GLAD to hear she is doing better. Glad to hear the switch is on Molly will be very pleased. Our thoughts and prayers have been with you every day. It's a miracle for Mallory and a learning experiance for all of us that miracles do happen and the power of prayer. Take care of your selves and that precious little girl.
Robin & Brad
Wow, to think how far little Miss Mallory has come in one weeks time is amazing! Her strength and support from everyone that loves her will help her to get better each day. It won't be long and those baby steps will turn into running. We are sending continued prayers and hugs from the sandhills!
Love,
The Tinants
So glad things are going as planned. We continue to pray for you each day. Ryan and I will be in St. Louis on Monday and plan on stopping in to say hi. If you need anything let me know and I will bring it to you. Your grandma sounds like a great person and I'm sure she is watching over Mallory. Mallory is a very strong little girl and I know she will continue to get better each day. Hang in there!!
Yeah! Glad to hear the good news!
Praying for the continued forward Baby Steps
Dawn Dettmer
So glad to hear of Mallory's progress that she continues to improve. Heather showed me your site, and I am watching for updates each day. Yes, we certainly do pray for little Mallory that she becomes stronger each day. She now has one more person added to her prayer chain! -- Heather's mom
I have a hard time imagining a toddler coming out of all those meds and becoming fully awake. Mom & Dad get as much sleep now as you possibly can because once she's off everything....just watch out world! I bet she'll wonder where her medicine bag went! She's going to be a force to be reckoned with. I hope Madison & Logan have good running shoes, because little sister is going to want to keep up with them! How fun it will be to watch her get stronger and stronger. What a trooper!
Stay strong guys! You two are really inspirational.
Jan Moore
When you think of how far Mallory has come, I would say those baby steps have added up to some pretty big adult size steps in the past week. Way to go, Mallory! And way to go parents, nurses and doctors! With the wonderful care and prayers from so many, those baby steps are going to take her out of ICU!
Keep up the good work!
John, Cheryl and Aaron
PS - I said hello to Logan yesterday and he shot me one of those handsome Logan smiles :)
We so appreciate your updates Wendy, you have described your days with such detail and we can't thank you enough. As always, our daily thoughts and prayers center around your little Princess and her amazing family! We pray for God's continued guidance as you all venture down this new path...one step at a time.
All our Love- The Bernards
Your strength and courage are inspiring. Thank you for sharing the journey with all of us at home. It is as you said such a roller coaster ride. But I have always felt in my heart that Mallory is here to stay!
Dear Miss Mallory, Mommy and Daddy, We're all dancing in the streets with hearing all the good news. The power of prayer is almost unbelievable. You have prayers coming from churches in Wichita and Oklahoma, on top of the thousands already going out for you. Wendy, thank you so much for the updates. We check it every morning and every night.Big hugs to all of you! The Gigstads
I just heard yesterday that Mallory had received her new heart. I was thrilled and got your blog address at the fitness center. I read all of your daily reports and Dennis & I are so thankful that all is going well for Mallory. We pray for her and know that God is watching over her. Dennis & Cindy Rinne
Remembering all of you in my prayers.
So happy Mallory is doing so well.
Love to all!
Great Grandma Wendt
Wishing you all the best. Our love and prayers are with you.
Mallory: you have been on our prayer line since the day you were born.
Our XXXX and OOOO are with all of you!
Delaine, Dee, Steve, and Jessica
We just wanted you to know that we are all thinking of you. We hope each day shows improvement. Best wishes to all of you!
LaVern & Joyce & Family
Glad things are going as they should be, every step is a step toward's going home.
Thinking of you guy's and sending our love
Dan and Liz Gellerman
So glad things are going as planned. That's always good. Those baby steps are working. Soon Mallory will be up and running around. Get your rest now like others are saying! Isn't that music to your ears?
Love the updates. They keep all of us involved. You are still in our prayers. Those prayers work!
Renee'
In our guidance class today in Logan's first grade, we were talking about feelings. Logan had a huge smile on his face and decided that today, he was feeling like a calf--kicking--because he was HAPPY! What a great reason to be happy--knowing that Mallory is just that much closer to coming home. Praying for all of you always!
The top of any mountain can be reached with enough baby steps. Keep it up Mallory.
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