Mallory Jane

Children are loving reminders of what we are really here for.

Wednesday, April 25, 2007

HAPPY HEART DAY!!

As most of you know Mallory has a new heart. Today is also Scott's birthday-and Jeff's too! :)
All along Scott has said the best birthday gift would be Mallory getting her new heart. He got his birthday wish. She is doing great! I thought I'd just let you all know what our day was like today.

6:30am Call from the transplant coordinator, "We have a possible heart for Mallory" . We called Scott and the grandparents and told them the news, then grabbed a couple of things and headed to the hospital.

7:10am We checked in at admitting at SLCH and were directed to check into 7 west-the cardiac unit. All the rooms were full so they put us in the treatment room. this is a room they reserve for blood draws, etc. Mallory recognized exactly where we were so we did a lot of hall walking. Our upstairs neighbor, Avrey, who just got his heart last week, was in the room across the hall so we did some visiting. The nurses drew the needed labs, got the urine sample, I signed consent forms and spoke to both the harvesting and transplanting doctors. A chest x-ray was also taken. The transplant coordinators were also in to check on us and Becki from Child Life helped make the unpleasant things a little easier-yes, she brought in bubbles! We were told everything was scheduled to start at noon.

11:45am Our nurse Kelly walked us down to the surgery waiting area. The anestisiologist came in to have consent forms signed and explain the procedure from their end. I gave the OR nurses my digital camera and asked if they could take some pictures for me. I mostly wanted a picture of Dr. Gandi (sounds like candy) bringing the heart into the surgery suite. Jean, one of the OR nurses who was also with us on March 2nd said she would make sure great pictures were taken. it just so happens Jean's sister works at the Ronald McDonald house and they, along with everyone else, have been saying extra prayers for Mallory.

NOON: This was the hardest part of the day so far. I had to walk Mallory to the doors of the surgery suite and "hand her over" to Jean. They did not give her a sedative this time so Mallory was fully aware of what was happening. It was kind of like a movie. I gave Mallory big hugs and kisses from me and Daddy, handed her to Jean, and as Jean was walking through the doors and down the hall, Mallory was reaching for me over Jean's shoulder, arms outstretched, yelling "Mama, Mama, Hug, Hug" then the automatic doors closed.

1:30pm Daddy arrives at the Hospital!!!

1:45pm the OR nurse, Barbara, came to tell us Mallory went to sleep just fine and all the lines are in. they are just waiting for Dr. Gandi to visualize the donor heart and let them know if it was a go.

1:55pm Dr. Gandi said the donor heart looks good! Mallory's chest incision was made.

2:50pm The first team is out and Dr. Gandi is getting ready to remove the donor heart.

3:20pm Mallory was put on the by pass machine and the donor heart has arrived at SLCH! Jean and Dr. Gandi both stopped by to let us know how well Mallory was doing. Dr. Gandi had a huge smile on his face and said the donor heart is great!

3:30pm Barbara came in to let us know the donor heart is being sewed in and Mallory is doing very well and is such a strong little girl!

4:04pm Barb brought my digital camera in to show us what pictures she had taken so far. WOW! You wouldn't believe what we have.

5:05pm Mallory was off by pass machine, the new heart was beating on it's own, and Dr. Huddleston was getting ready to close her chest.

6:00pm Dr. Huddleston came in to let us know they were moving Mallory up to the PICU and she did great. He was very happy with how the surgery went.

7:30pm Mary, the PICU nurse came and got Scott and me. We got to see our baby for the first time since the transplant. SHE IS SO PINK! :) Scott noticed her toes first and I noticed the tip of her nose. There was no blue to be found! Mary kicked us out for another hour so she could get all of Mallory's lines, pacer wires and tubes all untangled.

8:30pm We got to see our baby for another hour and a half, and then Mary sent us back to the Ronald McDonal house with some specific instructions. "Eat, drink, and sleep. You have had a long day and will have an even longer week, so rest now and come back first thing in the morning". Mary also gave us her phone number and said to call her as many times as we want through the night. :) They were going to sedate mallory a bit more so she wouldn't fight the vent tube. Dr. Huddleston wants her to stay intabated overnight and rest and the goal is to get her off the vent first thing in the morning.

Thank you to everyone for all the prayers and notes you have sent us. We are so grateful to EVERYONE! I'll keep you updated!! Wendy

28 Comments:

Anonymous Anonymous said...

What a wonderful day!!!! We are so thankful to God that he has answered this prayer. Now we pray that he continues to watch over all of you and give you strength during the healing process.
Happy Birthday, Scott!

Steve, Susan, Sarah & Tyler Wellman

9:24 PM  
Anonymous Anonymous said...

Such an overwhelming joy for you guys! Thanks so much for the updates!

Robyn

4:41 AM  
Anonymous Anonymous said...

Thanks for the updates. May they all continue to be the best news possible. Try to continue the "eat, drink and sleep" orders and we will continue to pray.

5:17 AM  
Anonymous Anonymous said...

God is good! We are so excited for all of you and hope that the next couple of days go as well as Wednesday did. We will keep up the prayers!

John, Cheryl and Aaron

5:37 AM  
Anonymous Anonymous said...

Thank God for this wonderful extension of life!!! Thank you Wendy for keeping us all posted--we are all on pins and needles as you are...see, we are walking right beside you as is Jesus...you can't even see us!!! love to Logan and Madison and all your family...
Karen

5:46 AM  
Anonymous Anonymous said...

Yeah to Mallory! You are so brave and so strong!

I am at an appraisal class in Kearney. You have an entire group of appraisers praying and cheering you on!

Way to go! Tell mommy thanks for posting all your info and tell Daddy and Uncle Jeff happy birthday!

Jan

5:53 AM  
Anonymous Anonymous said...

Muellers -

What wonderful news!! You have been in our prayers and will con-
tinue to be.
Thank you for all the updates. I
have been checking it every day.
The day care kids love to see
Mallory's beautiful picture with
her crown (especially Grace D.)
God bless you all.

The Pardes

5:58 AM  
Blogger Pamela Traudt said...

What an awesome day! We are so very happy for all of you. We will keep all of you in our prayers. Happy Birthday Scott!

Shawn, Pam, Emma, Hunter & Ashton Traudt

6:07 AM  
Anonymous Anonymous said...

What a great day!! Thank you so much for the updates. I have been and will continue to pray for all of you. You are all terrific!!

6:32 AM  
Anonymous Anonymous said...

I am sitting at work just crying because of this amazing story. You have truly got a gift from god and he loves you all very much. Continue to stay strong and we will continue to pray for that little girl. Love Corie Gorton

6:32 AM  
Anonymous Anonymous said...

Words cannot descibe the joys and emotions we are going through with you. The power of prayer is unbelievable. They are even coming from my family in Kansas.We know the days ahead will be very stressful but Mallory will do just fine knowing her Mommy and Daddy are there holding her.
Carolyn and Orval

6:58 AM  
Anonymous Anonymous said...

We are so happy for you and your family! We are glad things are going so well and pray thing continue to go great. You are in our thoughts and prayers!

Andy, Stacey, Jenna and Lauren

7:16 AM  
Anonymous Anonymous said...

I just found your web site yesterday and I keep getting on for updates. Thank you for keeping us all posted. Aunt Brenda is working today and everyone wants an update, glad she's here to tell them the great news. I pray everything continues to go good for Mallory with her recovery.
Kim K.
P.S. Brenda sends her love and will be writing to you soon.

7:32 AM  
Blogger Heather Bakula & Family said...

Congratulations!!! I am so thrilled Mallory received her heart. My prayers are with you all as you make the road to recovery. Mary Brown just called and told me that you have been in St.Louis since March. Wow! What amazing strength and stamina you all have shown. We will be praying that Mallory gets home soon to Syracuse. From one heart mom to another, you have an amazing little girl. Get lots of rest if you can. Take care and know we are thinking and praying for you.

Lots of hugs to you all,
Heather

8:14 AM  
Anonymous Anonymous said...

What an unbelieveable story. Can't imagine a better birthday present for Scott. May God hold Mallory in the palm of his hand as she starts on her road to recovery. You have a whole town cheering for you. Can't tell you how excited we are for you and your family!

Ray & Patty Janssen

9:15 AM  
Anonymous Anonymous said...

What a wonderful gift to receive! I am so happy for all of you, and especially little Mallory! Susan told me the news this morning and I was so excited to hear the news! Give Mallory hugs and kisses from all of us at Dr. Martin's office!
Sue

9:46 AM  
Anonymous Anonymous said...

What Wonderful news!!!!!!!!! We're so thankful all went well and you're doing great Mallory.. We were just talking about you at the RSV Clinic Tuesday. Kellee had her last one this season and I told the nurses nothing has happened yet on the Heart. Then I get on your site Mallory and Hurrah it happened. Take care!!! We're thinking of you all.

Roxie, Russ, Joseph and Kellee Snethen

11:15 AM  
Anonymous Anonymous said...

M is for miracle.
A is for angel.
L is for lovable.
L is for living.
O is for organ.
R is for rewards of prayer.
Y is for yahoo!

What a great day 04.25.07 was. That day lots of prayers were answered. The days ahead, prayers will continue to be answered. We have to put it in God's hands. The past was the beginnnig of a new beginning for Mallory's family and friends. We feel very close to you and our love goes out to all. One day at a time.

Bob and Carol Schuetze
(Max, Sawyer & Eva's Grandparents)

P.S. Did you know that April is organ donor awareness month?

11:50 AM  
Anonymous Anonymous said...

Yeh! :-) All I want to do is cry and say thank you God! I am so happy for all of you to recieve such a wonderful gift! Thanks for sharing the details, it almost feels like I am there with you. Hang in there!

12:08 PM  
Anonymous Anonymous said...

We are so thrilled Mallory's new heart is beating strong! What a blessing for all of you. I have checked your site everyday and have prayed for you and your family. Thanks for the updates. Mallory has touched so many. We will pray that God will continue to watch over little Mallory as she recovers.

Rick, Mary, Rachael, Brooklyn and Jackson Nordhues

2:38 PM  
Anonymous Anonymous said...

Mallory, please know that prayers are being sent for you baby girl.
You've shown that you have the spirit and the will to go thru this process to be able to come home healthy and happy.
For Scott, Wendy, Logan and Madison, you all have handled this with such grace and strength, you really are an inspiration to the rest of us.
God Bless you all.
Tammy, Ed and Tara Mason

3:09 PM  
Anonymous Anonymous said...

Oh we were so happy to hear the news:) We are praying for a smooth healing process and many smiles to come from that Mallory. Thank you for the updates, I don't know how you do it! God has blessed Mallory with wonderful parents. Were continuing to pray for you all
Ron, Tammie, Alli, Aaron and Taylor

3:39 PM  
Anonymous Anonymous said...

We are so thankful that all of our prayers for Mallory and your family have been answered! We will continue to keep you in our prayers for a quick recovery. Happy Birthday, Scott!! What a gift!!

Ron, Sherri, Whitney, Morgan, & Dayne Wilson

3:41 PM  
Anonymous Anonymous said...

Wow! What an wonderful day. We are so happy for you. May God bless you all on Mallory's road to recovery. What an amazing miracle for your family.

Andy, Jocelyn (Janssen), & Clara Pearson

3:42 PM  
Anonymous Anonymous said...

We are so glad that Mallory's surgery went so well. That prayer has been answered. We continue to pray for healing for Mallory and strength for your family.

Chuck and Dixie

4:14 PM  
Anonymous Anonymous said...

Dan just got home from Syra and told me that Mallory has her heart!

Wonderful, our prayer's have been answered and what a wonderful Birthday present for you Scott.

God Bless you Scott and your family, will continue for Mallory's healing.

Love you all Liz and Dan

1:08 PM  
Blogger Jamie Tiernan said...

What terrific news! So happy to hear that Mallory has received her heart and that she is doing so well. Thanks for the updates. We will continue to pray for everyone as you start the healing process. She is a very strong girl. God bless you.
James and Jamie (Lamb) Tiernan

8:01 AM  
Anonymous Anonymous said...

Hey Wendi its great to hear that Mallory is good!! It's great that you have this connection back here at home to let all of us know how well shes doing!! She's in our thoughts and prayers everyday!! You all are very strong people and we are pulling for you all!! Until next time take care!!

7:49 PM  

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