A Better Night
I just got off the phone with Mallory's nurse, Jackie. Mallory had a good night. Her BP stayed where they wanted it for most of the night. It varied a bit when they went to far down on one, and up on another one of her drugs. They quickly made an adjustment and her BP came back to where it should be. They also did give her some blood products, which she tolerated. They did have to put an additional line in to give her blood. I was worried about Scott not liking that because she already has so many lines coming out of her. Jackie told me Scott was just fine with it. As Scott said, "she is still sedated and paralyzed, and on pain medication, she's not going to feel a thing'. The nurse got the new line in, in only one poke. Oh Happy Day! :)
Although she is finally pink in color, her hands and feet have been ice cold. This means the blood is not profusing the way it should through her body. Yesterday her legs were cold all the way from her knee down to her toes for most of the day. When I left last night she was making progress and was cold from her ankle to her toes. Jackie told me this morning that her feet are almost warm!! :) As you parents out there know, the one thing you can do for your kids is make shure they are warm. It's so frustrating when you have the warmest sock on your child and their feet are still ice cold. I know I said sock. She can only wear one sock right now because she has an IV in her left foot.
So all in all, Mallory and Daddy had a good night. I'm off to the hospital right now so Scott can come back to the apratment and sleep. We pray that Mallory continues on this path of baby steps forward, and hopefully we can soon start to think about waking her up and getting her off the vent. But one baby step at a time. :) Have a good day!
20 Comments:
I just told Max and Sawyer to cross their fingers because I was going to go and check Mallory's website. Max said, Mama, why do you always say that? I said, because, we keep hoping and praying that little by little, she will keep making progress :) So we'll take this good news and keep praying and (we'll keep crossing EVERYTHING)! It's going to be a better day! We're sending you love, strength and patience.
The Brammiers
Wendy and Scott.
I can only imagine how hard this must be on you. Wish I knew of some way to make it easier. But I believe that Mallory gets her strength, determination, and her spirit from both of you.
Just please know that you are always in my thoughts and prayers.
Tammy Mason
Mallory,
We are praying and greatful for the baby steps you are taking. You are a brave and strong little girl and know that you are just testing the doctors to make sure that they know what they are doing.
Scott and Wendy,
Hang in there! We are sending strength, hope and patience your way! God is watching over everyone involved with Mallory and will not give you more than you can handle. You are all so strong!
The Nielsen's
So glad she had a good night. An hour doesn't go by that I don't think about everything that sweet little girl and you and Scott are going through. I've been praying for Mallory. Hopefully your roller coaster ride is almost over. Thanks for keeping us all in touch with the progress. You are a very strong and special family.
Brad and Robin
We are so glad Mallory had a better night, she is such a fighter, she sure comes from good stock! The prayers from Nebraska and the whole Seelhoff family will keep on coming her way.
Nancy Seelhoff
Mallory, here is my plan for the day:
Pray for Mallory while doing laundry.
Pray for Mallory while doing dishes.
Pray for Mallory while mowing the lawn.
Pray for Mallory while running errands in Syracuse
Pray for Mallory with kids at bedtime.
Here's what I hope Mallory does today:
Stay warm
Have perfect blood pressure
Feel all of our prayers
love your mommy and daddy (that's an easy one)
You can do this! You are a super duper strong princess!
You go girl!
Jan
ps - We never forget mommy, daddy, grandmas, grandpas, sister, brother and aunts and uncles in those prayers either!
So glad to hear the night was better! We are praying that Mallory's baby steps get a little bigger each day, and soon they will match the size of her steps when she is RUNNING with her new heart! She is very lucky to have such a strong family holding her hand as she is taking those steps! Sending you positive thoughts and prayers!
John, Cheryl and Aaron
Scott and Wendy,
We are praising God that Mal's night was better. Hang on to your hope and faith.
Mallory, We love you, keep hanging in there sweetie.
To ALL families members we keep you in our thoughts also as the waiting is so hard.
Dave and Robyn
You were the last people I thought of last night and the first this morning. Keep that sense of humor and positive attitude, it's what saves us all! Love and prayers to you!
Judy Rippe
Today I'm sending warm thoughts from the top of my head to the tip of my toe's sweet baby girl. I think I will also wear just 1 sock today. it is covered with little pink pigs!!! Keep taking thoes baby steps.
Scott& Wendy,
Your spirit and strength are amazing. They uplift me each and everyday. thank you for keeping us all in your thoughts through the updates. As always, you and all the kids are in our in our thougts and prayers as God continues to work miracles. M&M Pork
We are glad to hear that Mallory had a good night, Mom and Dad too! I cried when I read Jan's comment, but its true that we find ourselves thinking of Mallory several times a day and sending up prayers for her each time. I bet there is not an hour that goes by without someone (or lot's of someones!) sending up prayers for her. And we do pray for Mallory and the whole family, as well as all the doctors, nurses and anyone else who comes in contact with her.
Jill and Marissa Nosal
Mueller family,
I find myself thinking about all of you often. I give Madison an extra hug every day because your family is so special. We will all continue to pray for the day when we each get to watch Mallory run and play with her new heart! She is such a fighter and I know she will continue to improve each and every day. Thinking of you always,
Lori Berner
Dear Mallory
I hope you are doing better. I am glad you found a heart. Your sister and brother are doing well in school.
I can't wait to see you.
God Bless You
Anna Kastens
I read your updates regularly first thing in the morning and last thing at night like so many of us. I don't know how you do it. Stay strong for Mallory and the rest of your family. Double what grandma Jan said. Bless all of the larger family and what they are going through. Our prayers cover them. too. Just keep Mal warm and keep those little steps coming. We know you are a Family Relying on God and have been all along. More prayer and love sent to you.
Love, Leon & Renee
So many people are praying and thinking of you so often. Please find a small piece of strength in this.
Also knowing the caring nurses and doctors working with Mallory is such and added bonus.
Mary Kreifels
I sit here reading and listening to the quiet sounds of the breeze and the birds, and the boys laughing outside--and I think of you and hope that soon it will be your turn to be home enjoying those most simple, most precious moments. May you feel strength, endurance and God's comforting hand as you face another day. Know that our family is praying for all of you.
Wendy -
I've been checking in on your little princess for two days now and am so happy to hear some good reports!!! Just keep putting one foot in front of the other each day. Before you know it, you'll be stopping by the RMH office for your daily mail run. :-)
Can't wait!!!
Cheri
Hello Mueller family! Amy Peterson & family are praying, smiling, crying (tears of joy!) along with everyone else on this blog. You all are just pillars of strength--it sounds like you and Scott make an awesome tag-team-- that is so smart! Wendy, I'm sending you an extra big squeeze to thank you for taking the time to explain all of this for us, bit-by-bit. We're hanging onto every word. Thank you for keeping us posted. Hugs and prayers to all!
Hooray strong Mallory, keep it up!!!
Wendy, Scott & Mallory, You are all so strong. If you're ever feeling down just picture all of us (everyone you have heard from) standing around you in a circle and feel the strenght and comfort from our prayers. That goes for Maddison and Logan and the grandma's and grandpa's too. You are all in so many prayers. Also your Dr.'s and nurses. We can't forget them. Thanks for keeping us updated Wendy.
Gerri & Alan
Wendy & Scott,
I am so thankful little Mallory is doing a little better. I know riding that roller coaster is not much fun and I'm praying for strength for you and Scott. I'm glad you have a wonderful support system from all your family and friends to help you through all of this. You are an amazing family and I know your strength inspires many people. Give Mallory a hug for me!
Take Care,
Susan (Mallory's nurse)
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