Hello Again!
Were you wondering if I was ever going to update this page again!? :) Mallory is doing great. We had three doctors appointments since we have been home, and all is well. At the last Cardiology appointment she had a blood draw, Echo and EKG. Everything came back looking great, and there isn't fluid around her heart any more. Yippee! Mallory will have her next biopsy on Wednesday, June 6th. Dr. Gumbeiner warned us that at some point in the first year after transplant we can expect to see a biopsy come back showing some amount of rejection. He told us not to worry, that we will get it under control right away if it happens. Mal had a physical therapy evaluation with Cathy Ebers at Handprints and Footsteps in Lincoln. She had "play time" with Cathy after her first two surgeries. Cathy was very excited to see Mallory and was amazed by how good she looks. Mallory is also doing very well physically. Cathy feels she will not need long term physical therapy. Some of the things she is having difficulty doing, like crawling onto the couch and chairs, is mostly due to her short legs, rather than lack of strength. :) We are all still adjusting to life as "Party of Five". As Scott and I both expected, all the kids are testing limits and seeing what Mom and Dad are going to agree on. The kids are already out of school for the summer and the activities have begun. We are very lucky to have a WONDERFUL young lady, Chandra Rumery, helping us out this summer. She will be hauling Logan and Madison to different activities and watching them when Mallory has appointments. I even had the chance to get my hair cut by myself! It was strange walking into Chris's shop and not hauling a diaper bag, entertainment, snacks, and kids along with me. It was very nice. :) I know you addicts out there would love to see something written daily again. Well.. I'm sorry to break the news, but it probably isn't going to happen. :) I will continue to update periodocally, like once a week or so. But if you really want to know what is going on, just give us a call. We would love to talk to you all. Thanks again for the continued support and prayers. We really appreciate it. |
8 Comments:
ALL great to hear, thanks for posting, I know it's the last thing you want to be doing!!
again, WELCOME HOME -- Traci Shipps
WELCOME HOME! Glad to hear that Mallory is doing great and happy that your family is back together again! Looking forward to seeing you in Syracuse sometime!
Take care!
Karla K.
I told you that I pushed Malory but I really pushed Madison I got there names mixed up but any way I am so glad Malory is doing well. I was so glad to Hearthat Malory is doing great and the doctors think so to. Hope to see you soon.
Paige and family
Now that the urgency in Mallory’s condition has gone away “we addicts” can relax and adjust to weekly or less postings. Thanks for thinking about us with everything else you have to think about. Welcome home and enjoy the summer and the help from Chandra.
I'm so happy to hear you are back at home and doing well!!!!! Thoughts are of you everyday when I look at her sweet picture on my board in my office :)
Thoughts and prayers,
Megan Connelly, APRN
so glad things are going as they should, don't know what made me check you blog today as haven't done it for a while since I knew you all were home once again.
Thinking of you and you little family
Dan & Liz
I actully was wondering if you would but also knew you would thank you again for sharing malory's story! :)
Mal Mal,
I'm so glad that you're doing so good!! I thought of you today when I was at Wal Mart looking at the cool Gazillion bubble machines!! Big hugs to the whole family!
Love,
Beck Beck
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